pelagikat: (Default)
2023-08-27 11:47 am

On being neurospicy and attending a rave

Last night we went to what was to all intents and purposes a rave. It is not my scene, but there were multiple DJs (some in teams), and a huge cavernous space for dancing – at University of Canberra Refectory. I joked earlier in the night that it was like going to a nightclub, but for old people because it started at 8pm. I would estimate a good proportion of the crowd were in their 40s and 50s – it was The Presets’ 20th anniversary show.

Now, I have never been to a rave. I went to – and worked at – goth clubs for a number of years around 2002-2008, but goth clubs are not raves. In fact, there was a bit of a dichotomy in the scene about bleep-y vs guitar-y goth music, which was often represented in the scene with different floors in the clubs for the broadly different styles. So last night was something of a new experience for me, and one that did not play out that well.

If you know me, or read my previous blog post, you’ll know I live with migraine. Now, migraine is a neurological condition and therefore, kind of by definition, those of us with it are neurodivergent. My previous post talked about how it’s a sensory processing disorder, and one thing about raves (so it turns out) is that there are a lot of brightly flashing lights. This would be a total no-no for some folk living with migraine, but I managed ok for a couple of hours. But once The Presets took the stage, the lights really ramped up and my brain went into meltdown. I didn’t go into a migraine attack, but I wasn’t dealing emotionally. There was too much light. There were too many people. They were jostling me. So we went to the back of the room, but apparently not far back enough because people walking behind me still walked into me. Even leaning against the back wall of the venue was didn’t help – the light was still too much. After trying to stick it out, I decided it was time to get off the floor; so we went and sat down in the venue foyer and let my brain calm down. It was actually pretty good just sitting there and listening to the music without being bombarded with strobe lights. We eventually decided to go home 90 minutes into The Presets’ set, because I wasn’t going to manage those lights again, and it was getting on to midnight.

The best thing we got out of last night was the tshirts. They have skulls with a rainbow spectrum that’s heavy on the pinks and blues, which is about as me as you can get. The only thing that would make these shirts better would for them to have been on black fabric.


I guess I’ll stick to going to see metal bands in the future.

EDIT: I forgot to say - this wasn't a great experience but it's good now that I have these frameworks of neurodivergence to explain what the hell's going on in my brain when I go from "having a good time" to "nope crying now" in the matter of a few minutes. One thing we think about migraine is the idea of thresholds; that you can take a certain level of stimulation/triggers without too much problem, but go over that and *boom* migraine attack (or neurospicy event). Brains are fucking weird, folks.
pelagikat: (Default)
2023-07-24 10:57 am

Fun facts about migraine; or, why I can tell what laundry detergent you use

I have an absurdly sensitive sense of smell. I’ve always had it, but it’s only been lately that it’s started to occur to me that maybe not everyone else does. I am pretty sure this is a migraine thing. A lot of people think that migraine is a bad headache, maybe with a few other symptoms, but research from the last ten years has begun to characterise it as a sensory processing disorder, where your brain is exceptionally sensitive to outside stimuli, which may then go on to trigger a migraine attack (the headache/pain phase). Some people might be familiar with the idea that people with a migraine attack need to go sit in a dark, quiet room, and this is why. For what it’s worth, I am mostly not photophobic (where you’re sensitive to light), although I think it might be getting a bit worse as I get older. I am occasionally phonophobic (where you’re sensitive to sound), but mainly in the way that certain sounds can make me want to destroy the source, rather than trigger an attack (at least, that I know of). But smells are one of my killers. Growing up in a house with a person who smoked, and used a lot of perfume and hairspray was a particular form of torture in the mornings, although I was told I was just being oversensitive. I used to be a classical musician, and once went on a rant about people (let’s be honest – they were string players) who would wear perfume in the orchestra pit. I still maintain that this is rude when you have a bunch of people in a confined space who need to breathe deeply and often to do their work, but I think in hindsight it was just my sensitivity that made me so upset at the time.

I am actually not certain that smells trigger attacks with me; but I am truly terrible at identifying my triggers, so who knows. I do know that I can tell, at some distance, when people have washed their clothes with Cold Power. I can tell when I walk past someone’s house and they have laundry hanging out to dry. And I really hate the smell of Cold Power. So spare a thought for us poor super-smellers when you douse yourself in perfume, or wash your laundry in (terribly) scented detergent. You might be inadvertently giving someone a literal migraine.